Vital Science
Free for Life: The Story of n-Lorem Foundation
- Autor: Vários
- Narrador: Vários
- Editor: Podcast
- Duración: 0:30:41
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Sinopsis
When patients face the diagnosis of a rare disease, they face a costly, uphill battle to develop a treatment for their condition… that is, if they ever do. Dr. Stanley Crooke is aiming to change that. As the CEO of n-Lorem Foundation, his mission is to provide personalized treatments to ultra-rare disease patients for free as long as they live, no questions asked. Thanks to his humility, coupled with the generosity of other individuals and companies, ultra-rare disease patients have a renewed hope to get the treatments others may not be able to provide. Join Dr. Crooke as he reflects on his humble beginnings at Ionis, the approach n-Lorem takes to developing drugs for ultra-rare diseases, and what the future holds for research in this area.Show Notes n-lorem Foundation Charles River - Rare Disease Vital Science S4, E01 Project ALS: Fueled by Love 2021 Rare Disease Trailblazers BioSpace: n-Lorem Foundation Preps First Doses to Treat Ultra-Rate Disease Patients for Free Ionis Pharmaceuticals N